February 3, 2023
Pharmalot Columnist, Senior Writer
The falling out among the ALS Association and its chapters appears to stem from a reversal in fortunes. The ALS headquarters was, for awhile, flush with cash following the Ice Bucket Challenge fundraiser in 2014.
John Blanding/The Boston Globe via AP

STAT+ | Leading ALS advocacy group roiled by infighting over money and priorities

The ALS Association was accused in a lawsuit by more than a dozen chapters of "catastrophic leadership failures."

By Ed Silverman and Andrew Joseph


STAT+ | They were the 10% left out of life-changing treatments. Now these cystic fibrosis patients may finally get help

Vertex and other companies are starting to test treatments that could help the 10 percent of patients who were unaided by "modulator" drugs.

By Andrew Joseph


STAT+ | Turkish court hands Novartis and Roche a rare win over their efforts to promote an eye treatment

The companies have consistently run afoul of authorities in other countries where regulators have issued fines.

By Ed Silverman



Adobe

The FTC is finally ready take on health data leaks. The problem is bigger than GoodRx

The FTC's action against GoodRx was a first. But with the vast amounts of health data now shared online, it’ll be far from the last. 

By Mohana Ravindranath


STAT+ | Up and down the ladder: The latest comings and goings

From new hires to departures, promotions, and transfers, here are the latest comings and goings in the pharmaceutical industry.

By Ed Silverman


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